Earlier this week we had our support group, and the gang talked about the holidays and how they did or did not thrive through the two week break in meetings. I'd like to discuss Mrs. J. She is a recent widow and has no enthusiasm for any part of life except her little dog. She can drive, but finds it exhausting. In fact everything is exhausting. So she goes nowhere and sees no one. She talked about her late husband, and what a music enthusiast he was. I just asked the question "What music do you like?" She told us, and we encouraged her to play music, and recommended stations on the radio dial that she would like. I told the group that I try and have music going all day, because, frankly, when the house is silent is when the voices creep in. Right now I've got a new age channel playing Earth Lullaby by Jennifer Zulli. If I need to go someplace early in the day (like unrescheduled psychiatrist's appointments), I'll crank up the rock and roll on the iPad, and dance, or something like it, around the house. Fortunately the house is back from the road with lots of trees and bushes. Gets the motor running for a while. Music speaks to me, at any rate, whether it be Beethoven or Roll Over Beethoven or A Fifth of Beethoven.
And it helps to have it as we move into Year Four. Now I may not have the classic version of MS, but I do have an idea of what's going on in my head and things seem a little cloudier than last year and my balance is a little more off. But here's the kicker:
I am a devout Trekkie, as those who have read these posts know. As said devout person, I know how to do the gesture. There's lots of people who can not for whatever reason. A few weeks ago, I was watching a Trek rerun (counting down to the new movie) and I made the hand signal for Live Long and Prosper. Only my hand did not respond quite right:
One good thing is that I'm not as far as long as my dad at the same time frame. I've spoken enough about it here in previous posts. I'm just as trapped inside, but I watch this with a wonder that I am pretty sure he never felt. I know what's coming and am working as hard as I can to slow it down. I've still got a lot of things to do.
May we all Live Long and Prosper.